tag:blogger.com,1999:blog-5652546268198119543.post4093807898883203045..comments2023-05-03T05:11:22.932-04:00Comments on Dear Little Girl Of Mine: She's In -- Clinical Trial Sharon Edwardshttp://www.blogger.com/profile/07036149335179045368noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-5652546268198119543.post-77831745494571255582016-03-10T07:34:34.416-05:002016-03-10T07:34:34.416-05:00The trial is six months long and then I think ther...The trial is six months long and then I think there is another part to the trial she can try to get into and it is about two years. Thanks for thinking about her. Sharon Edwardshttps://www.blogger.com/profile/07036149335179045368noreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-61043101732156829362016-03-10T01:36:51.112-05:002016-03-10T01:36:51.112-05:00I have been wondering how this is going for Bethan...I have been wondering how this is going for Bethany? How long is this trial?<br />(((HUGS)))elizhttps://www.blogger.com/profile/16376096667336921796noreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-51973247777156740272016-02-24T21:59:13.690-05:002016-02-24T21:59:13.690-05:00How sad. I can imagine how hard it is for you -- e...How sad. I can imagine how hard it is for you -- especially since she has been with you so long. Sharon Edwardshttps://www.blogger.com/profile/07036149335179045368noreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-80118361255951375322016-02-24T21:14:23.059-05:002016-02-24T21:14:23.059-05:00Stopping by to catch up...........finally!! How wo...Stopping by to catch up...........finally!! How wonderful Bethany is in our thoughts and prayers as well as your new daughters.Praying this trial will bring a wonderful break through!!<br />Things here have been hard, our SP who has lived in our Group Home 27 years had some health scares. But then things worked out we and we were relieved. Until last Friday, she was diagnosed with inoperable brain cancer. She is 60. And we are devastated. I wish it was last Thursday. I can't sleep, and wake up lost.<br />((((HUGS))) to you all!elizhttps://www.blogger.com/profile/16376096667336921796noreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-7937030540350710542016-02-23T20:38:08.207-05:002016-02-23T20:38:08.207-05:00She will definitely be getting more sticks so I wi...She will definitely be getting more sticks so I will suggest some of your "tricks". Sharon Edwardshttps://www.blogger.com/profile/07036149335179045368noreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-25989251542851762762016-02-23T18:41:16.018-05:002016-02-23T18:41:16.018-05:00Brave girl! Three cheers for Bethany. I hope any f...Brave girl! Three cheers for Bethany. I hope any future trial participation will minimize the necessary sticks. Meanwhile, sticks always hurt me less if I pop a piece of hard peppermint candy into my mouth at the critical moment, while focussing intently on my toes - they are the part of my body which is farthest away from the "stick site". Maybe Bethany could see if these tricks work for her, if more sticks are part of the deal. Meanwhile, tell her I think she is doing something very heroic!<br /><br />Best wishes,<br />Susan in Kentucky<br />Cousin to 2 from U.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-51208917813847119962016-02-19T17:47:27.904-05:002016-02-19T17:47:27.904-05:00So glad your cousin did so well. Always good to he...So glad your cousin did so well. Always good to hear positive things as it can be a hard road. Bethany has done very well, but there is an awful lot of work involved in her care which I don't think many people know. We are hoping, like your cousin, that this trial may one day be of help to Bethany and others with CF. Sharon Edwardshttps://www.blogger.com/profile/07036149335179045368noreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-15584174089016253152016-02-19T16:47:52.128-05:002016-02-19T16:47:52.128-05:00So glad you got her into the clinical trial! I ha...So glad you got her into the clinical trial! I had a cousin with cystic fibrosis, and she got into every clinical trial she possibly could, always hoping to be a part of finding that elusive cure :) She did very well her whole life, grew up, married, had a child...all things she was not supposed to do when she was born in the 70s. The prognosis and treatment gets better and better as the years go on, and even though she is no longer with us, we cheer every advancement made in the research of CF! I love to see Bethany thriving and doing so well :)<br />Pollyhttps://www.blogger.com/profile/06970407081581843977noreply@blogger.comtag:blogger.com,1999:blog-5652546268198119543.post-60209247148581485562016-02-19T08:45:43.630-05:002016-02-19T08:45:43.630-05:00Such a beautiful little girl. She really is very s...Such a beautiful little girl. She really is very special, isn't she? I will be praying for you, sweet Bethany. <3 JoJo's Cornerhttps://www.blogger.com/profile/07598582453797668103noreply@blogger.com